We got a bit of a plan today, if it's possible to “plan” anything when it comes to GVHD. IF all goes well, and that's a big “if”, here's the current scoop. The doctors came up with a more aggressive time line than I had expected. They gave me a limited list of foods that I can try eating, put me on a new drug to try and suppress the immune reaction, switched me to steroids by mouth AND started to wean them today with a plan to continue tapering them every couple days. Said that if I can tolerate all the changes and start to increase my calories they'd think about letting me go home in several days! I'll have to drive back to Omaha a couple times a week to allow them to keep a close eye on my progress, but at this point I don't care. 2 days on the road for 5 days at home is worth it! Once again they reminded me of my need to be patient and the fact that GVHD isn't all bad. Couldn't have GVHD without a successful “graph” so it's a good sign that the transplant worked and Keith's cells are strong and fighting.
January 5, 2011 was obviously not great, but could have been worse. Frozen lactaid milk with a packet of artificial sweetener is surprisingly not too bad and we got a couple hours of “fresh air” this afternoon. (side note – True Grit is a pretty good flick ;)
Thanks for all the uplifting verses and well wishes – none go unnoticed or unappreciated!
But you are a shield around me, O LORD; you bestow glory on me and lift up my head. ~ Psalm 3:3
