Not much has changed today. Last night I got an unwelcome visit from the doctor about 7:30 – the final stains came back and the pathologist said it was GVHD Stage IV – the news was a bit of a shock since things seem to be improving. This morning after talking to every nurse, PA, NP and doctor about my concerns, they agreed that one lab result would not dictate the final diagnosis but that they needed to look at the entire clinical picture and make a decision. Supposedly the entire team, including Dr Vose, would be consulted later today and they would come up with a plan of sorts. Still waiting to hear how that went. Regardless, no treatment works in every situation so there will be a lot of watchful waiting, careful monitoring of my intake and output, and making changes along the way. Not to mention tons of prayer that the first line treatment of steroids is successful. I pray that they get things under control so that I can return home this weekend! They said that this is fairly late to present with what appears to be acute GVHD – delayed side effects, why am I surprised?
Will write more as I know more. Blood counts and electrolytes still look very good. Thanks for all your love, support and prayers!
